Please pray for this little girl!!

We brought our daughter home from China in Dec. 2006, she was a special needs baby with a diagnosis of cavernous hemangioma and concave chest. The hemangioma was bad but treatable. Shortly after coming home we found out her true diagnosis - NF1 (neurofibromatosis) It's a genetic disorder, actually the most common type occurring in 1 out of every 3000. Symptoms can vary from nearly none to multiple. Sydney unfortunately has a very large tumor, it is wrapped around her left lung, her aorta, trachea, and her spinal cord. It also protrudes from her back. You would NEVER know she has anything wrong with her. There is no cure and the only treatment option is surgery. Sydney is NOT a candidate for surgery- there is just TOO much involvement. The ortho Dr. was hoping to have her chest repaired to help alleviate pressure on her spine as she has developed scoliosis (although I can't tell) but this too is out of the question, it would just be too risky. There are a few clinical trials coming up that may offer a glimmer of hope. I would so appreciate a prayer request on your blog - we need all the prayers we can get! Please pray for Syndey and pray BIG! God knows what she needs.
~Sandy

Thank goodness it is Friday!

Everyone it still trying to get over this cold.  I cant believe how many boxes of Kleenex we have gone through the last week.  Not much new to report.  Ava received a care package from my hubby's cousin so enjoy the pictures of her and her new dress!

Also please keep the following family in your prayers, they are in China right now.  There daughter has the same heart condition as Ava and she has cleft lip and palette.  She is three years old and has not had surgery to fix her little heart.  They went to receive their daughter just like we did but one of the orphanage directors came out and told them that she was very sick in the hospital and dying!  I could not even imagine, they had no idea that she was so sick. You can read their story here.